In memory of Elena

In November 2019, little Elena and her family participated in our studio recording for the Not So Rare campaign. Elena and her parents were so committed to our cause that they didn’t hesitate to make the return trip between Quebec City and Montreal, more than 4 hours away, to participate in our video shoot. Almost …

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Tiktok SMA Challenge

A challenge to save lives Yan Défossé,  father of Liam, a young boy afflicted with the disease launched the “Tiktok SMA challenge”. In short, SMA is a degenerative neuromuscular disease that causes muscles to get weak, shrink or even die. Fortunately for Liam, who is in Quebec, he is receiving a treatment that stops the …

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