On November 12, Max’s Big Ride and his partners are relaunching Not So Rare campaign and petition. It was bad before. With the pandemic, now it’s worse. People afflicted with a rare disease have to navigate an overwhelmed health-care system. Forced to endure delays for the care they need to survive and thrive. MORE THAN …
At the age of 10, Enya contracted Lyme disease. This rare disease is transmitted by a tick bite. Enya and her family went through hell before she was diagnosed and treated. On average, Lyme disease affects 2.7 per 100,000 Canadians. Most cases are in Quebec, Ontario and Nova Scotia. Diseases are considered as rare when …
In November 2010, Carole Elkhal and her husband Marco Del Cane waited anxiously at the Montreal Children’s Hospital. Something was wrong with their three-month-old daughter Giulianna. She could not feed and lacked muscle strength. But what was it? They feared the worst. After 26 days in hospital with their daughter, they were sent home without …
Barry Katsof was a high-profile Montreal businessman, who ran a globally recognized company for 34 years. One morning in early 2000, he awoke to find blood in his urine. His doctors sent him for a large battery of tests, but they found nothing. Barry knew something was still wrong, so he persisted through two additional …